Support - online forums
Medhelp - undiagnosed symptoms forum
Inspire - undiagnosed medical condition support forum
Undiagnosed Crohn's Club forum
Undiagnosed Leukodystrophy Website
Undiagnosed - a brand new forum here waiting for you at Daily Strength
experience project - chat & get advice, support and help from a group of people who all say 'I Have An Undiagnosed Illness'
Other Support
For USA patients - Undiagnosed Diseases Program
"Some patients wait years for a definitive diagnosis. Using a unique combination of scientific and medical expertise and resources at the National Institutes of Health (NIH), the Undiagnosed Diseases Program pursues two goals:
- To provide answers to patients with mysterious conditions that have long eluded diagnosis
- To advance medical knowledge about rare and common diseases"
What can you do if you are undiagnosed? Help with pain. Undiagnosed children. Personal stories. List of diseases considered difficult to diagnose. Support forums for the undiagnosed.
